Food Trialing… again

I am trying to expand my daughter’s food options. Every time I go to the baby food section of the store there are so many types of mixed baby foods for her to try, the problem is…she is allergic to so many different ingredients.

Here is what she can’t have: Oats, Wheat, Rice, Broccoli, Pineapple, Turkey and Corn. (so far)

Now I am looking at the baby foods in the pouches most of the times but A LOT of them have rice or oats in them. Today I found a few with Barley in them or white beans in them. Now we have not trialed these food yet. So I have to pick a day that I want to set a side and get ready for a food reaction. I can’t make plans the day of a food trial because if she does get sick – and if her zofran doesn’t work to control her vomiting, then we are stuck.

FPIES is not a fun thing to go through.

So tomorrow morning I will try the white beans first. I feel that she is less likely to react to that…over the barley. I am really nervous about the barley. But if she can have it, then it will give her a few more foods to eat.

I am starting a food log for her – since her doctor just put in a referral for her to see a gastroenterologist, they mentioned that more than likely, the doctor will need a food log and to just save time by starting one now. It’s a good idea but I don’t really know what they will need to know. I can list a ton of safe foods, but I have a few foods that she reacted to that don’t make sense… which is why we try to only buy foods that we can read every ingredient to. Sometimes those longer chemical names are misleading – or have hidden allergies for her.

We are transitioning from infant formula to toddler formula this week as well. Lots of changes. I am less nervous about this change since she really hasn’t reacted to milk or anything in her previous formulas. I am just nervous that she will reject it and not drink the new formula. But her occupational therapist suggested this change – since I told them she would not be drinking cows milk. They asked if I had started her up on cows milk after she turned one. I don’t get it, why would I change to cows milk? Why would I stop giving her a formula that provides more vitamins and nutrients. Cows milk really doesn’t have all the good stuff formula has in it alone. So we told them we would likely stay on a formula, but that’s when they told me they have toddler formula. Honestly I hadn’t looked into it until after they mentioned it. So we are transitioning now that my daughter is almost 14 months old.

The other day we had some food reactions…but they were not FPIES related. She has been getting really red spots showing up around her mouth and sometimes on her chest, arms and back. We had an allergy visit last year and they ruled out all the basic foods – but for some reason, some of these baby foods keep breaking her out. Again, hidden allergens is what we are thinking. But we aren’t sure.

In case you were wondering – no we do not have a specialist in our area. We live in New Mexico and on the FPIES website it lets you locate doctors who register as knowing how to treat FPIES but no one in our state is registered, so we get shuffled around to different doctors since no one knows how to handle us. I have a facebook account where I connect with other mothers and fathers who are going through this, and the ones who have a doctor who understands this, help the rest of us out. I knew to ask my daughter’s doctor for liquid zofran because of this group and it has helped us twice so far.

Food Allergies just suck.

For Halloween this last year – we did the TEAL PUMPKIN project. We placed a teal pumpkin out in front of our home and I registered online so people could look us up, and we provided NON-FOOD items for children who have food allergies (as well as any child who just didn’t want candy). While I was out trick or treating with my son, a little boy apparently came by and thanked my husband for being a teal pumpkin house. That made it worth it. We know we made that kid’s night.

Hey readers – I know this blog is relatively new- I had another one before this but decided to change my location. I was thinking of doing a monthly give away (I do reviews online for random items and if I find a good item to give away I may do a drawing of some sort in the VERY near future) comment below if you are interested in this and pass my blog along to a friend. I am also looking for more blogger friends, so if you blog, please comment on my post and let me follow you back!



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Suspended…Again

Those of you with school aged children, this is for you. My son is 10 years old and is in the 5th grade. He is in special education (ADHD, Mood Disorder, and Sensory Processing Disorder). We are dealing with his multiple suspensions…again. It is so frustrating dealing with the school and their failed Behavioral Intervention Plans.

Every year, since he was 5, we have had a BIP in place for my son. That’s fine. But this year his new teacher just can’t seem to keep me up to date on issues, and often forgets to tell me about incidents. So how can I fix problem behaviors if I do not know about them until a few weeks later?

Well I got a phone call today from the school – he is suspended again for a day. And we are having a meeting on the 8th of February with his BIP team to find a solution to his behavior and how to keep him in school, etc. He is also scheduled for an evaluation for ASD and to see if he can have a social worker with him at school.

Now here is the thing, next school year we are going to home school him. But right now we are waiting on the testing for the ASD and for him to finish up the school year. I need to prep to home school him too. But in the mean time I am struggling keeping him out of trouble. I often wonder why he can’t just NOT misbehave. It’s frustrating, and the school always seems like he is the ONLY child to ever misbehave. I gave them resources for years, they used to have access to his old therapist before she quit, and they only used her once and when they did he helped them! It was amazing – they listened to her suggestion and the problem was solved.

Now they are finally getting the school psychologist involved. My son will have outbursts when kids who tease him bother him or touch him. He will also have outbursts when people touch him on accident (sensory issues), and I have tried to get him help and the school does have him in occupational therapy but even they don’t seem to understand these things… when we had a meeting they were more worried about his hand writing than the sensory issue… the sensory issue is what makes him act out a lot…not the hand writing thing.

I might need to take him to an outside facility again – he went to one for 2 years before but I hated their billing department so much – they were always waiting 3 months to bill and we are high deductible, so I would always have to call them and notify them that they have to RE-BILL because we met our deductible already. I work in the medical field in coding so I know how this stuff works, but having to fight with a company all the time about bills is just frustrating.

I feel like I am in this alone with my son. My ex doesn’t have to deal with it because he only sees our son in the summers for one month. My husband lets me deal with all medical stuff for our kids. And is not helpful with my son’s behavior and I feel like he just doesn’t get along with him anymore.

I love my son but I just wish I knew how his brain worked. None of my friends or family have kids like him. I wish I could find more people with kids who have similar issues to see what they do that helps….how do you get your kid to go through one day with out a break down at school? How can I get him to listen?

We do medicate and he does OT at school – we are still looking for a replacement therapist since his old one left and we didn’t click with the new one very well. What do you do with your kids? (please only comment if you have a similar situation, if you have a child with out any disabilities please don’t judge, your techniques will likely not work on my child, there are things that we can’t implement because of his issues). His doctor, before she left (his pcp, not his therapist) suggested he might be on the “spectrum” and that’s why we are waiting to be tested at the school. Just in case you were wondering.

My son is 10 but acts like he is 6. He is VERY immature for his age but is smart. He struggles at learning sometimes because of his ADHD. He literally cannot sit still, ever. He throws fits so fast and will scream and throw things, we have been working on this for YEARS now but the behavior comes and goes. He has a bunch of sensory issues. But I love him. I will remind you that I do love him. I just wish I understood how to help him.


Things are getting better, sometimes

This week my mother came into town to spend time with me and my children. It’s been nice to have her help around the house as well as her help with the children. She and my son went out to the movies to watch “The kid who would be king,” and I hear it was a good movie.

The little cakes I made in my last post turned out great!

I got a lot done yesterday and today. I did something I hate doing, I went bra shopping. I gained a lot of weight in my pregnancy with my baby girl and losing the weight is not easy. I am out of shape and I need to get rid of this weight, and trying on bras made me feel even worse. But I did find bras that fit me and I am going to be dieting this coming week – and I am trying to find time to work out.

Today though, my mother took me out to lunch, which was nice. We don’t go out often since she lives so far away from me.

Photos above are of Lily at lunch. She was really excited to be there and got to sit in the high chair now that she is getting stronger.

Today was also her Occupational/Physical Therapy. She is doing great lately, it gives me hope that maybe she will walk soon, or even crawl better and for longer distances soon.

Lillian receives therapy at home. We have received these services for a year now since she was born early and born underweight. The services are great- we receive them weekly and they work on her ability to crawl and do other things babies her age are doing. We are experiencing some developmental delay but we are going to catch up eventually.

Lillian has been trying to call me MAMAMA and her dad, DADADA. She hasn’t figured out the shortening of that name yet, but tonight she did learn the word, UP. I have been trying to say the words to her that I want her to learn, when we are doing tasks. She wanted me to pick her up, so I repeated “UP ” to her until she said it, and then I picked her up and praised her. We repeated this a few times until she started saying “up” with out me needing to say it to her. This is a big step for us.

When your child is behind on certain things – these little steps mean so so so much. I get frustrated when people ask me why she can’t walk, or if she will ever walk. Not all babies walk by a year old. Some take longer. Yes she has trouble crawling but she also used to have torticollis. We are taking things step by step with her.

As for my dog – the training with her is going well. She is doing better in our general living space lately and requires less observation. I have been working again for my short 4 hour shifts – and it feels nice being able to do things like that. I will be doing another product review soon – I just got a digital meat thermometer from Amazon for free and I want to see if it works as well as our old one. But I am hiding it from my husband since it is going to be a gift to him since he loves to grill and smoke foods.

I will let you all know what he thinks about it once I give it to him. I also have a few more Amazon items I will likely review. I just need to sit down for an hour with the items with out a kid around me. My kids have been keeping me very busy. Today I cleaned both of our bathrooms, and washed all of the bedding for my family, including my down comforter.

I am getting tired though. Tonight it was hard to write. I feel tired, and just … I don’t know. I feel like just zoning out. I think my depression is just bothering me.


A little normalcy

Juggling family life, work and any illnesses we suffer in our home (including mental illnesses) can take it’s toll. This is about my dog. She’s a year and a half old and just a wack-a-do. She is good around me and pretty much only me. So when the kids were in a room with her she would go bonkers, but now I have time to PROPERLY train her to be in the living room with us. We are on day 3… it’s going great. She still doesn’t do well with visitors, she wants to jump on them, etc, BUT she is doing great with sitting on the couch while the kids play in the same room.

My two kids and the dog playing peacefully

My busy schedule the last year and a half made it almost impossible to get her settled. She had to be in the room with me ALL of the time, no one else could watch her. She likes to dig and chew – so I am tackling those behaviors now. Chewing isn’t too bad, it’s the digging. I felt torn as a new mother last year to continue to work to have money to provide more to my family, even though I knew we would be fine.

I have worked since I was 17 and I have only had time off of work while looking for a job in 2008 and 2010 briefly. So going PRN (as needed), is hard for me. I want the time with my family but I also WANT to work. I am feeling more relieved after a few weeks doing this. My husband has a good job so I don’t need to worry now about money, thankfully.

Life is feeling more normal and I am trying to find a schedule to follow to make sure I don’t forget to do daily things on time – the week can get away from me quickly.

This weekend I am making cakes for my husband’s grandma. She bought me a cake mold for x-mas that I honestly wouldn’t use often just because I am #1 on a diet, and #2 they are cake molds shaped like wedding cakes… kind of odd but I figured I will make her little birthday cakes with it.

My mess – while looking up a recipe for vanilla cake ( I don’t like to use box mix)
One set of cakes cooking (don’t mind the messy oven, I need to clean it big time

I have just frosted the cakes – they look great. I had to make a set of non-dairy, non-soy cake mix for my SIL. Her baby has food allergies and is breast fed so I found a vegan recipe that worked great. I will be putting fresh fruit on the cakes tomorrow at the birthday party and hopefully my husband’s grandma will notice I used the cake mold she bought me for x-mas. I used to make cakes all the time but I am dieting now so I stopped.

We bought baby safety lock

Well another thing I did this week was, I bought baby safety locks for some of my cabinets in my kitchen. There are more cabinets we are going to lock but these two had items in it that my baby found out she could get into.

Works like a charm
After about a minute she realized she couldn’t get in anymore and wandered away 🙂

Seriously guy’s buy safety locks for your cabinets. They may not look GREAT but I have cleaning solutions in those cabinets and cast iron pots and pans that if she dropped on herself, she would get hurt. So it’s worth knowing my baby can’t just get in while I look away for a second. Accidents happen and I don’t want her to get hurt.

Below are some links to some good safety locks for different items around your home, check them out by clicking the image. The image will take you to the amazon page.

This is the lock we have, they work great for us.

These also look pretty good

I love the idea of this one

I also bought a large pack of those plug covers. Those are a must with my baby since she has decided that she wants to stick her fingers in everything she sees! What kind of safety items have you found that work for your family?

Please note that some of the links above are affiliate links, and at no additional cost to you, I will earn a commission if you decide to make a purchase after clicking through the link. Please understand that I have experienced all of these companies, and I recommend them because they are helpful and useful, not because of the small commissions I make if you decide to buy something through my links. Please do not spend any money on these products unless you feel you need them.

Back to work – but NOT full time

This week was my first week back at work – or I should actually say, first day back since I only worked one day this week.

At the end of December 2018, I stopped working full time at the medical facility I work for. I am a medical coder and I work from home. Seems like a sweet job, and it is. But both of my children need me for different reasons at home.

My daughter is 13 months old and is developmentally delayed, only by a few months but she can sort of crawl, she has not really said any real words yet other than mamamama and dadadada, she doesn’t associate words with us though. Up until now, I have been working and taking care of her but now she needs more from me, and she’s getting more and more active. So #1 reason to be a SAHM, my baby. My #2 reason is my son, he has ADHD, a mood disorder, sensory processing issues and we are currently testing him for ASD through his school, he is 10 years old. We are going to home school him starting this next semester, or after his testing.

So for the past 3 weeks I have been off work – I did make an agreement to work PRN (or as needed) with my work, they are amazing. But I was also very sick with an upper respiratory infection and bronchitis these past 6-7 weeks, so I delayed starting up for a few weeks. But now I need the hours, so I am working 2 days a week for 4 hours each day. I also offered my time up for any emergency call outs but that’s different.

I am excited that I can still keep my job – stay on the pay roll. And I can be a SAHM still. My bosses said they understood my decision – I let them know 6 weeks before the change. I actually put in my notice to quit because I did not know it was an option to be PRN – but they called me back and offered me to stay on the pay roll. I was beyond happy.

I am lucky enough to be able to do this.

For those of you who struggle with being able to be there for your kids – look into different careers. I know it is hard. I went to school at night for 3 years, while my husband (bf at the time) watched my son every night so I could get a degree, and then get certified. Now it would have taken less time if I could go more hours but I had to work full time as well in medical records for my local hospital in the mean time, so I had a lot on my plate but it was worth it.

BTW, returning was great yesterday- I got a lot of work done and I felt helpful to my coworkers since I am there to help them out now when they are backed up 🙂

Do you work from home? Would you like to work from home? What got you motivated to change your career if you have been through this too?


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