I am trying to expand my daughter’s food options. Every time I go to the baby food section of the store there are so many types of mixed baby foods for her to try, the problem is…she is allergic to so many different ingredients.
Here is what she can’t have: Oats, Wheat, Rice, Broccoli, Pineapple, Turkey and Corn. (so far)
Now I am looking at the baby foods in the pouches most of the times but A LOT of them have rice or oats in them. Today I found a few with Barley in them or white beans in them. Now we have not trialed these food yet. So I have to pick a day that I want to set a side and get ready for a food reaction. I can’t make plans the day of a food trial because if she does get sick – and if her zofran doesn’t work to control her vomiting, then we are stuck.
FPIES is not a fun thing to go through.
So tomorrow morning I will try the white beans first. I feel that she is less likely to react to that…over the barley. I am really nervous about the barley. But if she can have it, then it will give her a few more foods to eat.
I am starting a food log for her – since her doctor just put in a referral for her to see a gastroenterologist, they mentioned that more than likely, the doctor will need a food log and to just save time by starting one now. It’s a good idea but I don’t really know what they will need to know. I can list a ton of safe foods, but I have a few foods that she reacted to that don’t make sense… which is why we try to only buy foods that we can read every ingredient to. Sometimes those longer chemical names are misleading – or have hidden allergies for her.
We are transitioning from infant formula to toddler formula this week as well. Lots of changes. I am less nervous about this change since she really hasn’t reacted to milk or anything in her previous formulas. I am just nervous that she will reject it and not drink the new formula. But her occupational therapist suggested this change – since I told them she would not be drinking cows milk. They asked if I had started her up on cows milk after she turned one. I don’t get it, why would I change to cows milk? Why would I stop giving her a formula that provides more vitamins and nutrients. Cows milk really doesn’t have all the good stuff formula has in it alone. So we told them we would likely stay on a formula, but that’s when they told me they have toddler formula. Honestly I hadn’t looked into it until after they mentioned it. So we are transitioning now that my daughter is almost 14 months old.
The other day we had some food reactions…but they were not FPIES related. She has been getting really red spots showing up around her mouth and sometimes on her chest, arms and back. We had an allergy visit last year and they ruled out all the basic foods – but for some reason, some of these baby foods keep breaking her out. Again, hidden allergens is what we are thinking. But we aren’t sure.
In case you were wondering – no we do not have a specialist in our area. We live in New Mexico and on the FPIES website it lets you locate doctors who register as knowing how to treat FPIES but no one in our state is registered, so we get shuffled around to different doctors since no one knows how to handle us. I have a facebook account where I connect with other mothers and fathers who are going through this, and the ones who have a doctor who understands this, help the rest of us out. I knew to ask my daughter’s doctor for liquid zofran because of this group and it has helped us twice so far.
Food Allergies just suck.
For Halloween this last year – we did the TEAL PUMPKIN project. We placed a teal pumpkin out in front of our home and I registered online so people could look us up, and we provided NON-FOOD items for children who have food allergies (as well as any child who just didn’t want candy). While I was out trick or treating with my son, a little boy apparently came by and thanked my husband for being a teal pumpkin house. That made it worth it. We know we made that kid’s night.
Hey readers – I know this blog is relatively new- I had another one before this but decided to change my location. I was thinking of doing a monthly give away (I do reviews online for random items and if I find a good item to give away I may do a drawing of some sort in the VERY near future) comment below if you are interested in this and pass my blog along to a friend. I am also looking for more blogger friends, so if you blog, please comment on my post and let me follow you back!